Stakeholder | Aims/remit | Data source | Population and coverage | Funding source | Main outputs |
Overarching quality improvement objectives to: reduce unit and network level variation through benchmarking, outlier identification and management, sharing best practice and quality improvement (QI) examples, and signposting to resources available in the wider neonatal care system nationally, to seek to reach agreed developmental standards for process measures where care currently falls below those standards report outcome measures and their variation between units and networks collaborate with other audits to improve neonatal care adapt to new and emerging quality improvement priorities. | 2006 – 2019: NNRD
2020-2025: Clevermed | England, Wales, Scotland (2015 – 2019). Intention for Scotland to rejoin and Northern Ireland to join | Commissioned by Healthcare Quality Improvement Partnership (HQIP), delivered by the Royal College of Paediatrics and Child Health (RCPCH). Funded by England, Scottish, and Welsh governments. | Annual NNAP report ‘Near real-time’ reporting of quality measures Quarterly data quality reporting | |
QI programme relating to infection in patients in intensive care units | UKHSA Second generation surveillance system | England | UKHSA | ICCQIP reporting | |
Support audit, evaluations, benchmarking, quality improvement and clinical, epidemiological, health services and policy research to improve patient care and outcomes | NNRD (derived from Clevermed data) | England, Wales, Scotland | Grant income | Health services evaluation Research publications | |
Operational Delivery Networks (ODN) | Identify and monitor strategic aims, align service development to national and local priorities and ensure identification of future needs to maintain and improve patient access and equity of service delivery to the required standards | Predominantly Clevermed | 13 neonatal networks | Specialised Commissioning | Network reports Dashboards |
CRGs consist of clinicians, commissioners, public health experts, patient and public voice representatives and professional associations which offer specific knowledge and expertise to advise NHS England and NHS Improvement on the best ways that specialised services should be provided. Lead on the development of clinical commissioning policies, service specifications and quality standards. Provide clinical advice on innovation, horizon scanning, service reviews and guide work to reduce variation and deliver increased value. Ensure that any changes to the commissioning of specialised services focus on the needs of patients and the public with the support of their patient and public voice representatives. | Various | England | NHSE Specialised Commissioning | Commissioning products SSQD | |
Support providers in delivering service improvements and efficiency improvements through identification of areas of unwarranted variation in clinical practice and/or divergence from the best evidence. Each workstream culminates in a report and a set of national recommendations aimed at improving the quality of care and also reducing expenditure on complications, litigation, procurement and unproven treatment. This work also supports the development of the which enables NHS hospital Trusts/Boards to compare areas of efficiency and productivity alongside their quality indicators and standards. | NHS Digital (many sources NHS data) Clevermed MBRRACE NNAP GIRFT Questionnaires | England | NHS England/Improvement | Individual Trust & Network datapacks National Reports: Combined RCPCH workforce snapshot Sept 2020; GIRFT National Neonatology Report; and GIRFT Neonatology Workforce Reports | |
Statutory reporting and recording of comprehensive data, standardised across a whole country (England), on the circumstances of children’s deaths. Aim: to reduce modifiable child (0-18 years) mortality Legal basis – Children Act. | Child Death Review partners and Child Death Overview Panels | England | HQIP on behalf of NHS England | Annual data return/report for England Thematic Reports 2 weekly real-time surveillance reports for NHS-England | |
Provide robust data and evidence to support: 1. improving the quality of maternity and neonatal care to improve outcomes for mothers and babies and reduce maternal and perinatal mortality and morbidity; 2. reducing inequalities in maternal and perinatal outcomes related to social and ethnic disparities, and maternal age; 3. education, training and continuing professional development of clinical staff from those in training through to senior medical, midwifery and nursing staff. | Perinatal deaths data from all Trusts and Health Boards across the UK. Births and deaths data from ONS, NHS Digital (England and Wales), NRS (Scotland), NIMATS (NI) | England, Wales, Northern Ireland, Scotland, Jersey, Guernsey and Isle of Man | NHS England, Scottish, Welsh and Northern Ireland governments. Commissioned on behalf of the funders by HQIP | Perinatal mortality surveillance annual reports and interactive maps Perinatal confidential enquiries of perinatal deaths and severe perinatal/infant morbidity Trusts/Health Boards have access to their own data via the Real-time Data Monitoring Tool | |
Tool to support systematic, robust, local review of all perinatal deaths. Note that PMRT is not a data collection tool as such, but the process inevitably ‘collects’ data | Reviews of perinatal deaths carried out in local Trusts/health Boards | England, Wales, Northern Ireland, Scotland, Jersey, Guernsey and Isle of Man | Department of Health and Social Care England, Scottish, Welsh and Northern Ireland governments. Commissioned by HQIP on behalf of the funders | National report with higher level findings. | |
Produce accessible and relevant outputs to a variety of stakeholders, healthcare professionals, commissioners and service users on a number of key measures and identify unexpected variations between maternity services. | NNRD (previously) NHS Digital (Maternity Services Data Set) Hospital Episode Statistics | England, Scotland and Wales | Commissioned by the HQIP. Led by the Royal College of Obstetricians and Gynaecologists in partnership with the Royal College of Midwives, the Royal College of Paediatrics and Child Health and the London School of Hygiene and Tropical Medicine. | Quarterly reporting of clinical data Annual clinical report Periodic ‘sprint audits Research publications |